This Charity Trust has been set up for two main reasons:
- To raise £250,000 allowing ground breaking research into the cause of Moebius Syndrome
- To find 100 people with Moebius Syndrome who will assist us with the DNA testing
How can you help?
If you, or someone you know have been diagnosed with this condition, please contact us. We are attempting to create a data base of subjects which may be asked to help with the UK scientific research into the cause of moebius through the diagnosis of Micro Deletion Testing. This research is taking place at The Western General Hospital in Edinburgh.
In order to find the cause and move ahead, we really do need your help
Many thanks
The Moebius Research Trust
Exciting Competition Time!
Our latest competition is really special. To celebrate Red Nose day Peter Kay has been travelling around the UK sitting on a settee! He has chosen to record a fun version of James’ famous song Sit Down and Dave, the drummer from James has once again donated a fantastic prize to the Moebius Research Trust.
If you would like to win a Stella McCartney designed T Shirt signed by Peter Kay and the band James simply like the Moebius Research Trust Facebook page. We will draw a winner on the 15th March.
Please share this post with as many people as possible so that we can highlight Moebius and the fantastic work done by the Moebius Research Trust to raise money to research this condition.
