The Moebius Research Trust are raising funds to conduct research into Moebius Syndrome.

This extremely rare condition causes facial paralysis amongst other symptoms and takes away their chance to smile.

Please help us raise sufficient funds so we can research the causes of this syndrome and provide signposting services to those who have this condition.

About

With only approximately 200 people in the UK affected, there is no research carried out into this condition. We want to find the cause and provide signposting services to those affected.

How You Can Help

Our initial target of £250,000 has now been achieved, and we are in discussion with researchers on how this can best be utilised.  Continued support and fundraising will mean more can be achieved.  There are many ways in which people can help. See how you can make a difference to children and adults living with Moebius Syndrome.

Moebius Syndrome TRUST CONFERENCE

16Th AUGUST 2024

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If you have any questions about Moebius Syndrome or would like further information about Moebius Syndrome Research Trust, please contact us.