This Charity Trust has been set up for two main reasons:
- To raise £250,000 allowing ground breaking research into the cause of Moebius Syndrome
- To find 100 people with Moebius Syndrome who will assist us with the DNA testing
How can you help?
If you, or someone you know have been diagnosed with this condition, please contact us. We are attempting to create a data base of subjects which may be asked to help with the UK scientific research into the cause of moebius through the diagnosis of Micro Deletion Testing. This research is taking place at The Western General Hospital in Edinburgh.
In order to find the cause and move ahead, we really do need your help
Many thanks
The Moebius Research Trust
