About the Moebius Research Trust

The idea of the Research Trust was initially hatched after two families, from different ends of the country, met at a conference held by the Moebius Support Group. It became very apparent that although there was a lot of positive discussion about the condition, very little head road was being made into the cause. After a chance meeting with a Geneticist in Edinburgh,it soon became clear that if enough test cases with the condition would be willing to help with Micro Deletion Testing, then the answer to the cause of Moebius Syndrome was possible.

The Moebius Research Trust was set up in September 2006 with the original four parents as trustees. Their aim is to raise the £250,000 required to allow the analysis to get underway. They believe that within three years an answer is achievable allowing the Trust to publish the results worldwide.

If you would like to make a donation please go to the donation page where there are a number of ways to contribute to the trust.