My name is Kristy Hennessey and I am 15 years of age.
Having Moebius Sydrome has had its ups and downs. To me I am no different to anyone else, just because I have a disability doesn't mean I am not capable to do anything anyone else can do. I am always true to myself as why would I want to be anyone else...I am me and proud!
Growing up with the condition means that I have a slight learning delay which has frustrated me and my learning at school. This has put extra stress on me as I have GCSEs coming up soon!
Also due to the condition I have been involved in many hospital appointments which have taken over some of my life. This is having to give up a lot of time to travel to various different hospitals.
I am definitely not the type of person who would let Doctors run tests on me. I used to always try and get away from the Doctors but as I am getting older I realise how much help and support the hospital have given me through the years which I am so thankful for!
Being brought up by a supportive family and motivating teachers has given me confidence in myself to become who I am and succeed in life without being dragged down by others. This has made me grow into a stronger and positive person as life is too short to worry about what other people think of you! It has been a challenge to accept and understand my condition but this hasn't stopped me from doing the things I love.
I absolutely adore performing arts! Dance and drama have been a massive part of my life. I am inspired by the glitz and glamour of Strictly Come Dancing! I love being a part of different productions and even pantomimes, this has kept my head held high!
I am currently studying GCSE Expressive Arts at the moment which involves dance and drama. For the exam I need to show my emotion in my performance, even though I cannot show any facial expression it hasn't put me off performing.
I think of it this way if you can't do something their is always some way around it and mine is to use emotion through my body language.
If you have any questions please contact us.