“Facing the Future” Moebius Syndrome Conference

Sat, 03 Aug 2019 09:00 - 16:30

Holiday Inn Birmingham Airport,

Coventry Rd,


B26 3QW,


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Event F.A.Q

What does the conference rate include?

The conference price includes tea/coffee & light snack on arrival and during breaks as well as a buffet lunch – dietary requirements catered for. Also included is free wifi and parking during the conference.

Can I bring my children to the conference?

Yes, children are welcome – under fives are free. We have organised professional creche facilities in the room adjacent to the conference suite so your children are catered for throughout the day. There is no cost to you, but please check the Tinies information and book your place(s) on the conference booking form.

How do I book the hotel?

We have negotiated special accommodation rates at the Holiday Inn Birmingham Airport and these need to be booked directly for Friday 2nd and/or Saturday 3rd August 2019 by calling the Events Team on 0121 780 6700, Option 1 and quote code MOE. The costs agreed by the hotel are £79 for a double room B&B or £99 for a family room B&B per night.

Who are the speakers?

Dr Adel Fattah –Plastic Surgeon from Alder Hey Children’s Hospital in Liverpool – who spoke at the last conference and will give an update on research in the UK and talk about Smile Surgery. Dr Bryn Webb - Genetics and Genomics specialist from the Mount Sinai Hospital in New York, USA – who will talk about the research work she has been doing in the USA.

Is there more information about the dinner?

The dinner is an informal event held in the conference suite for families and friends of those attending the conference. There will be a three course menu – with children and special dietary requirements catered for. It’s an opportunity for everyone to relax and get to know other people affected by Moebius Syndrome.

Conference Programme:

Main Event:

09:00-09:30/09:45 Arrival & registration – tea/coffee & light snacks

10:00-10:15 Opening presentation – Colin Read, Founder Moebius Research Trust

10:15-11:15 Dr Bryn Webb, Genetics and Genomics, Mount Sinai Hospital, New York, USA

11:15-11:45 Break – tea/coffee & light snacks

11:45-12:45 Dr Adel Fattah, Plastic Surgery, Alder Hey Children’s Hospital, Liverpool

12:45-14:00 Buffet lunch

14:00-14:30 Wendy Blumenow, Specialist Speech & Language Therapist, Alder Hey Children’s Hospital, Liverpool

14:30-15:00 Sumathi Sinnappan, Licensed Vita Stim Provider, Consultant Speech Language Therapist/Pathologist

15:00-15:30 Break – tea/coffee & light snacks

15:30-16:00/16:15 Q & A session

16:00/16:15-16:30 Closing session – Colin Read

19:00 Dinner

Conference Dinner:
19:00  –  21:00
Informal event for family and friends of those attending the conference.
Three course dinner