The Moebius Research Trust are raising funds to conduct research into Moebius Syndrome.

This extremely rare condition causes facial paralysis amongst other symptoms and takes away their chance to smile.

Please help us raise sufficient funds so we can research the causes of this syndrome and provide signposting services to those who have this condition.

“Facing the Future” Moebius Syndrome Conference - 3 August 2019








Join With Us At Our 2019 Conference

After the success of our 2014 conference, we are holding our second event in Birmingham at the Holiday Inn (Airport) on Saturday 3rd August.
Visit our Conference 2019 page to find out more and to book your ticket now.


With only approximately 200 people in the UK affected, there is no research carried out into this condition. We want to find the cause and provide signposting services to those affected.

How You Can Help

In order to reach our target of £250,000 there are many ways in which people can help. See how you can make a difference to children and adults living with Moebius Syndrome.

If you have any questions about Moebius Syndrome or would like further information about Moebius Syndrome Research Trust, please contact us.

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