Life Stories

In this section we will share people’s life stories.

We will include stories from those who have Moebius Syndrome or are affected by the condition.

If you would like to feature please contact us using the form below. Everyone’s experience of Moebius is unique and as such it is lovely to hear from a cross section of people.

To read more please click on the name below:-

Callum Robey

Tuesday Mennie

Kristy Hennessey

Emma Gratton

Kirsty Lowther

If you have any questions about Moebius Syndrome or would like further information about Moebius Syndrome Research Trust, please contact us.

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