Life Stories – Kristy Hennessey

My name is Kristy Hennessey and I am 15 years of age.

Having Moebius Sydrome has had its ups and downs. To me I am no different to anyone else, just because I have a disability doesn’t mean I am not capable to do anything anyone else can do. I am always true to myself as why would I want to be anyone else…I am me and proud!

I had a slight learning delay in my early childhood development, this has put some frustration on me with my schooling as it doesn’t come easy to me.

Also due to the condition I have been involved in many hospital appointments which have taken over some of my life. This is having to give up a lot of time to travel to various different hospitals.

I am definitely not the type of person who would let Doctors run tests on me. I used to always try and get away from the Doctors but as I am getting older I realise how much help and support the hospital have given me through the years which I am so thankful for!

Being brought up by a supportive family and motivating teachers has given me confidence in myself to become who I am and succeed in life without being dragged down by others. This has made me grow into a stronger and positive person as life is too short to worry about what other people think of you! It has been a challenge to accept and understand my condition but this hasn’t stopped me from doing the things I love.

I absolutely adore performing arts! Dance and drama have been a massive part of my life. I am inspired by the glitz and glamour of Strictly Come Dancing! I love being a part of different productions and even pantomimes, this has kept my head held high!

I am currently studying GCSE Expressive Arts at the moment which involves dance and drama. For the exam I need to show my emotion in my performance, even though I cannot show any facial expression it hasn’t put me off performing.

I think of it this way if you can’t do something their is always some way around it and mine is to use emotion through my body language.