In order to support more people within the UK, we are organising a number of local fundraising groups. Could you help us with this? You could share your own experiences and become a vital part of the Moebius Research Trust, whilst raising vital funds for us so we can carry out research and support those with Moebius Syndrome.

  • To organise fundraising events in your local area
  • To share information and coordinate activities on behalf of Moebius Research Trust in your local area
  • To place collection tins in local shops and pubs and emptying and sending cash when they are full.
  • To encourage other people in your area to fundraise for the Moebius Research Trust.
  • To help to raise awareness in your area – through local media and events


To discuss becoming a Fundraising Champion please contact us.

If you have any questions about Moebius Syndrome or would like further information about Moebius Syndrome Research Trust, please contact us.

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