“Facing the Future” Moebius Syndrome Conference - 3 August 2019








After the success of the 2014 conference – we’re holding our second event in Birmingham at the Holiday Inn (Airport) on Saturday 3rd August.

The programme is being confirmed, but the day will start at 10am (registration from 9.30am) and finish at 4.30pm. As before we have organised a conference dinner on the Saturday evening at 7pm.

Conference and dinner bookings can be made online very soon.

We have negotiated conference rates at the Holiday Inn, Birmingham Airport and these should be booked directly for Friday 2nd and/or Saturday 3rd August 2019 by calling the Events Team on 0121 780 6700, Option 1 and quote code MOE. The costs agreed by the hotel are £79 for a double room B&B or £99 for a family room B&B per night. There are plenty of rooms available but if you encounter any problems, please call Dionne on 07941109356.

It was fantastic to see so many people last time – and we have used the feedback to create the programme for this year. We look forward to welcoming even more people to ‘Facing the Future’.

Check out the photographic memories from 5 years ago below.


The information I gathered from the conference was more than I have been able to get from 100’s of hospital appointments in the past.


Karen Miles, Jono & Laura, George on bagpipes – inspirational!


Very inspirational. Well done, fantastic event.

If you have any questions about Moebius Syndrome or would like further information about Moebius Syndrome Research Trust, please contact us.

10 + 15 =