by Alison Christie | Feb 13, 2026 | Uncategorized
At the end of last year, after an application from Dr Bryn Webb, Associate Professor in the Division of Genetics and Metabolism at the University of Wisconsin-Madison – who has attended and spoken at our last two conferences – applied for a year long project grant for...
by Alison Christie | Nov 20, 2025 | Uncategorized
Dr Emma Waite (she/her), based at the Centre for Appearance Research contacted us in March in connection to doctoral research exploring the lived experiences of LGBTQIA+ young people with visible differences. The charity support this through sharing the link for her...
by Alison Christie | Sep 8, 2025 | Uncategorized
Read the article in the Newcastle Chronicle featuring Andy Den and his determination to help find answers after his son, William, was diagnosed with Moebius Syndrome....
by Alison Christie | Jul 28, 2025 | News, Uncategorized
Great Ormond Street Hospital has a long history of caring for children and young people with facial palsy, including those with Moebius. Professor Grobbelaar led the service for the last decade. He was trained at Mount Vernon by Mr Douglas Harrison, who first...
by Alison Christie | Jul 28, 2025 | News, Uncategorized
In July, the Moebius Syndrome Foundation shared the results of a 10-year genetics research study, which they partly funded, and is now published in Genetics in Medicine Open! This study included 149 individuals with Moebius syndrome – the largest study to date...
by Alison Christie | Jul 28, 2025 | Uncategorized
A big ‘THANK YOU’ to everyone who joined us for the very first Moebius workshop on 12th July! We are very grateful to all the amazing young people who took the time to share their own experiences with others! This workshop included lots of fun interactive games, a...
